21Nov
Compassionate Allowance Update
Here is a list of the 100 conditions (as of 10/13/11) which Social Security now considers eligible for the Compassionate Allowance program which can result in a very fast approval. Recently added conditions are in bold. An up to date list is available here.
- Acute Leukemia
- Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
- Alexander Disease (ALX) – Neonatal and Infantile
- Alstrom Syndrome
- Amegakaryocytic Thrombocytopenia
- Amyotrophic Lateral Sclerosis (ALS)
- Anaplastic Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
- Aortic Atresia
- Astrocytoma – Grade III and IV
- Ataxia Telangiectasia
- Batten Disease
- Bilateral Retinoblastoma
- Bladder Cancer – with distant metastases or inoperable or unresectable
- Bone Cancer – with distant metastases or inoperable or unresectable
- Breast Cancer – with distant metastases or inoperable or unresectable
- Canavan Disease (CD)
- Cerebro Oculo Facio Skeletal (COFS) Syndrome
- Chronic Myelogenous Leukemia (CML) – Blast Phase
- Creutzfeldt-Jakob Disease (CJD) – Adult
- Cri du Chat Syndrome
- Degos Disease, Systemic
- Early-Onset Alzheimer’s Disease
- Edwards Syndrome (Trisomy 18)
- Eisenmenger Syndrome
- Endomyocardial Fibrosis
- Ependymoblastoma (Child Brain Tumor)
- Esophageal Cancer
- Farber’s Disease (FD) – Infantile
- Fibrodysplasia Ossificans Progressiva
- Friedreichs Ataxia (FRDA)
- Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult
- Fukuyama Congenital Muscular Dystrophy
- Gallbladder Cancer
- Gaucher Disease (GD) – Type 2
- Glioblastoma Multiforme (Adult Brain Tumor)
- Glutaric Acidemia Type II (Neonatal)
- Head and Neck Cancers – with distant metastasis or inoperable or uresectable
- Heart Transplant Graft Failure
- Heart Transplant Wait List, 1A/1B
- Hemophagocytic Lymphohistiocytosis (HLH), Familial Type
- Hypoplastic Left Heart Syndrome
- Idiopathic Pulmonary Fibrosis
- Infantile Neuroaxonal Dystrophy (INAD)
- Infantile Neuronal Ceroid Lipofuscinoses
- Inflammatory Breast Cancer (IBC)
- Junctional Epidermolysis Bullosa, Lethal Type
- Kidney Cancer – inoperable or unresectable
- Krabbe Disease (KD) – Infantile
- Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent
- Late Infantile Neuronal Ceroid Lipofuscinoses
- Left Ventricular Assist Device (LVAD) Recipient
- Leigh’s Disease
- Lesch-Nyhan Syndrome (LNS)
- Liver Cancer
- Mantle Cell Lymphoma (MCL)
- Maple Syrup Urine Disease
- Merosin Deficient Congenital Muscular Dystrophy
- Metachromatic Leukodystrophy (MLD) – Late Infantile
- Mitral Valve Atresia
- Mixed Dementias
- MPS I, formerly known as Hurler Syndrome
- MPS II, formerly known as Hunter Syndrome
- MPS III, formerly known as Sanfilippo Syndrome
- Mucosal Malignant Melanoma
- Neonatal Adrenoleukodystrophy
- Niemann-Pick Disease (NPD) – Type A
- Niemann-Pick Disease-Type C
- Non-Small Cell Lung Cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent
- Ornithine Transcarbamylase (OTC) Deficiency
- Osteogenesis Imperfecta (OI) – Type II
- Ovarian Cancer – with distant metastases or inoperable or unresectable
- Pancreatic Cancer
- Patau Syndrome (Trisomy 13)
- Peritoneal Mesothelioma
- Pleural Mesothelioma
- Pompe Disease – Infantile
- Primary Cardiac Amyloidosis
- Primary Progressive Aphasia
- Progressive Multifocal Leukoencephalopathy
- Pulmonary Atresia
- Rett (RTT) Syndrome
- Salivary Tumors
- Sandhoff Disease
- Single Ventricle
- Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
- Small Cell Lung Cancer
- Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent
- Spinal Muscular Atrophy (SMA) – Types 0 And 1
- Spinocerebellar Ataxia
- Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent
- Subacute Sclerosis Panencephalitis
- Tay Sachs Disease – Infantile Type
- Thanatophoric Dysplasia, Type 1
- Thyroid Cancer
- Tricuspid Atresia
- Ullrich Congenital Muscular Dystrophy
- Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent
- Walker Warburg Syndrome
- Wolman Disease
- Zellweger Syndrome
If you have one of these conditions, you should remind Social Security (and even your lawyer or representative) that you may qualify for a compassionate allowance. Social Security has more information about how conditions in the compassionate allowance list are considered here. It is a pretty vertigo inducing amount of reading. You can also check out my other articles about compassionate allowances.
